I would like to share my story in hopes that this will help me obtain the necessary monetary donations to purchase my parents home. My name is “ Silvia “ I am a hospice/palliative care nurse. I moved back to my hometown since 2017. My father became ILL with End stage kidney failure . My father became very ill to the point he was no longer able to tolerate dialysis . He was hospitalized in January 2024. My father was discharged January 31, 2024 . He was placed under hospice care . On February 1,2024 my father wanted to be taken outdoors . I helped him sit in a chair . He looked up at the sky and said “ I will be leaving soon I don’t have much time left . I want you to take care of your mother because where Im going I don’t want her to follow me.” I want you to take good care of your mother keep an eye on her.” My father transitioned for about 2 weeks then he was in his active dying stage and he passed away at home surrounded by family on February 15, 2024. It was the most difficult time for my mom and our family . My mother went through a difficult time after being married for 56 years. My mom missed my father very much . My mother became depressed in spite of having us there for her. Everything changed. My parents had a yorki that they also loved . He became sick and had seizures . Rusty was sent to a yorkie foundation for care the night before he was supposed to come back home he passed away . My mother lost my father and shortly after lost her yorkie . My mom took it very hard . During that time my mom started having difficulty walking she was told by her doctor she was in need of a knee replacement. My mom decided to move forward with surgery for a knee replacement in April 2024 . My mother also went to rehab for physical therapy after her surgery she was not able to make any progress. My siblings and I continued to see changes in my mother. We didn’t know what was going on. We thought maybe she’s very sad and heart broken. As of April 2024 my mother began to decline she went from walking to no longer walking. Standing became a big challenge. Physical therapy was not effective. My mom thought she was dying she began to say her good -byes to us her children . I knew something was wrong so we sent her to the hospital where the doctors performed a spinal tab and they thought she had Gullian barre syndrome. The test was negative. My mother received plasma pheresis which seemed to help her a little . We still had no confirm diagnosis for my mom other than speculation based on her symptoms . Doctors also presumed stiff persons syndrome . My mother was discharged home she did continue to decline in her condition . She got to the point where she was having difficulty swallowing. She also began to show symptoms of increase muscle weakness , decrease movement to all her extremities . My mother was placed under palliative care which was one of the hardest decisions to make because all of these changes felt so unreal . We had no answers to her deterioration . My mom still had such a strong mind such admiration in her heart to want to live. She didn’t understand what was wrong . What was going on with her body . She knew things were changing she was unable to move her arms and legs . Her speech was also deteriorating . We contacted her PCP . She was referred to a neurologist by the hospitalist. My mom began to loose weight she was not able to eat sufficiently. My mom received peg tube in November 2024. The feedings helped her gain some muscle mass. At that point my mother was pretty much bedbound she was unable to move her arms or her legs. My mom was unable to tolerate a EMG to determine if she had ALS. At that point things progressed so quickly in less than a year . My mother lost her speech , she was unable to verbally communicate any longer we had to figure out a way to communicate with her by use of a board . During her changes I researched her symptoms trying to find out what was wrong with my mom . Her symptoms were steering towards “ ALS” it was very devastating to see her go through all those changes . Her mind was very strong she used to cry because she couldn’t communicate and she could not move . My siblings and I did our best to care for her . My mom wanted to-stay home she no longer wanted to keep getting test done. In June she began to have a weaker cough , changes in her breathing. Symptoms continued to change for her . My mother declined going to the hospital so we kept her under hospice care where she passed away on June 22,2024. Surrounded by her children . My mom passed at the age of 76. She had her Birthday on May 23, 2024. Even then we didn’t think that would be her last birthday we would get to be with her. We felt so robbed of her life with us. So much transpired in one year . We lost both our parents . Both my parents passed away at home . I would like to re build a replica of their home that they both worked hard for. ◦ My parents home has so much heartfelt memories. Many say that the memories you make are within your heart . That is true. But a home helps us relive those memories when we walk through that front door . I can picture my father working in his home . I can picture many holidays that have been shared in that home with my parents and their children and grandchildren. My memories of their last days before their passing are in that home. The memories when I visited or even lived are in that home . I picture my mother baking and cooking and I often helped her . I picture my mother planting her roses and watering them and talking to me giving me advice and just listening as a mom. Even when I used to get her up in a hoyer lift the few times she agreed too. She had me water her plants , cut the stems from the roses that were dry . I hope to one day write a book and tell my story . In hopes to reach others that may be going through the same. I am a nurse and take care of hospice patients . I never thought in a million years I would be walking in the same shoes and experience the devastation of losing the most important people in our lives. Whether it’s a mom a dad , a son , daughter , brother , sister or aunt and uncle. Losing some one you love so much is a pain that is a lifetime of hurt. Memories bring us tears and sadness they also bring us laughter and joy . I am asking for donations to help me buy this home and fix it up or rebuild. Please help me keep this home.
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