Hello. My name is Payton Franqui Im 14 years old and i’ve decided to start this LFEBridge for my brother Tristan (Tman), who will be 2 years old in the fall. He was born with a number of medical problems in the brain including diffused pachygyria, hypogenesis of the corpus callosum and cerebral palsy along with numerous other diagnoses. Because of his medical diagnoses he is unable to walk, sit up without assistance, crawl, talk, roll, etc. He became malnourished and is unable to feed on his own so he has a gtube (feeding tube) to make sure he is gaining enough weight. He also has a severe exaggerated reflex (he feels like he’s falling all the time) and has seizures because of it. My mom has to sleep holding him in her arms to stop this from happening. He has taken all kinds of genetic testing and they all have come back saying it’s not genetic which would mean it’s environmental which is even more rare. HARVARDS head genetic counselor Abbe Lai (with Walsh lab research) said they have never seen anything like it and they have decided to take his case even though it is not genetic. Even though we are not here to talk about my sister i would also like to give a little background on her. Stevie (4 years old) was diagnosed with down syndrome and spent about a month in the NICU when she was born and underwent open heart surgery at 1 and a half years old. During my moms pregnancy there were no signs of any complications. Even after Stevie was born they didn’t know she had down syndrome and she was only put in the NICU because of her lack of oxygen. Stevie is the smartest and most energetic person i know. She loves cocomelon, playing on the trampoline and dino nuggets. I decided to start this LFEBridge for my single mom of three. She has always been there for all of us and always puts us before any of her own needs. Tman has already exceeded the life expectancy of doctors. When we were given his short life expectancy my mom said to me “we are gonna kick this diagnosis in the butt just like we did down syndrome.” My moms dream later in life is to eventually start her own foundation for diagnoses like his to help other moms. This money would go towards medical bills, new equipment, making our house wheelchair accessible for the future and anything else that comes up. Any help would mean the world to me and my family and thank you for listening to my siblings story. #Tmantough
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