Sylvie’s fund - LFEBridge Foundation

im a mum with 5 children, my youngest daughter had a massive accident last year which nearly took her life. My daughter sylvie chocked and fallen into our paddling pool in our garden. She drowned, and my boys got her out, to me doing CPR. I had done this, until emergency services got to me, then we was rushed to king’s college hospital by helicopter. We was stuck at kings for 4 months, then transferred to our local hospital at Tunbridge wells hospital for 3 weeks until we had all the equipment delivered. January this year sylvie went to tadworth children’s trust for rehab and made so much progress. We was there for 12 weeks. We will be going back in near future. While we was at Kings College hospital, Sylvie was diagnosed with Dystonia • Hypoxic-ischaemic encephalopathy • 4 limb motor disorder with dystonia and spasticity • Seizures • Fully PEG fed (inserted 24.10.22) • Intermittent Stridor due to oropharyngeal dyskinesia and hypotonic upper airway • Unsafe swallow/ dysphagia • Breath holding episodes • High risk of fractures Background: • Left external iliac vein thrombosis • Left common femoral vein thrombosis Since we been home we have been attending community physio & OT and doing other things at the Demelza. We are waiting for an adapted house, but it’s a long process. She is now dependant on others for all her care needs & Mobility . She is tube fed for her meds & nutrition & eats little purée food. She’s non-verbal and has complex communication. struggles with movement. To help Sylvie regain the skills her had prior to her brain injury, she requires ongoing therapy, including physiotherapy, occupational therapy, hydrotherapy and speech and language therapy. There are also items of sensory equipment that Sylvie needs at home to help with these therapies and day to day life. Plus adaptions to our house. These therapies are not always local either, so we would like to use some of the money raised to help towards the additional expenses occurred during these, which could include petrol. This page will be an ongoing fundraising page as Sylvie will always require’s access to therapies and on going treatments & sensory equipment to help her with ongoing life skills. https://www.facebook.com/profile.php?id=100094658101799