I’m trying to raise funds to get the correct treatment for my epilepsy that has been uncontrolled. on Monday, July 3rd, 2024 lauren was driving when she had a sudden, unexpected seizure which caused her to lose consciousness, control, and ultimately totaled her car into a tree. The hospital dismissed her condition, and discharged her with only a concussion as diagnosis. The next morning, her husband woke up to her seizing again. It is rare to be diagnosed with epilepsy between the ages of 10-50. This has caused Lauren to face challenges with everyday life. She cannot work, drive, and has days where she can barely function due to seizures. It has been 13 months of experiencing tonic-clonic seizures. A hospitalization in Milwaukee was necessary to find out what FDA approved anti convulsant device she is compatible with. The hospitalization with Video EEG revealed seizures beginning in the left side of the brain, some passing to the right and back to the left depending on the type of seizure. It was abnormal. There are more tests I need to complete before a treatment plan is developed due to the abnormal results. The testing includes: ✅Functional MRI PET scan ✅MEG ✅SPECT and potentially an Invasive EEG (where electrodes are placed inside my brain) a panel of neurologists, epileptologists, and brain surgeons present me a care plan to hopefully control the seizures I’ve endured for a year. Potential treatment is as follows: Resective surgery is the most common epilepsy surgery. It involves the removal of a small portion of the brain. The surgeon cuts out brain tissue from the area of the brain where seizures occur. Laser interstitial thermal therapy (LITT) is less invasive than resective surgery. It uses a laser to pinpoint and destroy a small portion of brain tissue. Deep brain stimulation is the use of a device that is placed permanently deep inside the brain. The device releases regularly timed electrical signals that disrupt seizure-inducing activity. Corpus callosotomy is surgery to completely or partially remove the part of the brain that connects nerves on the right and left sides of the brain. Risks due to the potential procedure are: -Memory and language problems that can affect the ability to understand and use language -Visual impairment where the fields of vision of the eyes overlap -Depression or other mood changes that can affect social relationships -Headache -Stroke After the surgery, I will not be able to work for another 1-3 months. I will continue to take anti seizure medication along with the potential device that may be implanted, and 2/3 people do not encounter seizures anymore, but some still do. We’re hoping this surgery controls my condition with as little side effects possible. Thank you sincerely to all who are supporting our family with medical bills, lodging, meals, care for our dogs. I couldn’t be more grateful.
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