Hi I am Milla's mum, Cherie. Milla and Jai's little baby has been diagnosed with a very rare and uncommon major heart defect that is called CCTGA. This is a very rare condition that affects 0.5 to 1% in the world. With CCTGA both ventricles (pumping chambers) of the heart are reversed. He also has a very narrow vessel and a large hole in his heart. This will result in surgery when he is born along with many more surgeries in his first 6 months and lifetime. His heart is still functioning but surgery will be needed to reverse the chambers. In a normal heart the left side pumps sending blood to the entire body and the right side pumps to the lungs. With CCTGA the heart twists abnormally during the baby's development and these ventricles are reversed; the stronger left side is pumping blood to the lungs and the weaker right side is pumping harder to get to the whole body.. The right ventricle is not built to last as long as the left side. The surgery baby Ellison will need in his future is called a double switch which is the second most complex heart surgery next to a heart transplant. Initially he will be having a separate surgery to help widen the narrow vessell. Milla is 33 weeks pregnant and they have quite the journey ahead. They will need to relocate to Brisbane Mater when Milla is 36 weeks and for a few months after the baby is born. Financially this is a strain and quite stressful for Milla and Jai. If you would like to assist them in this journey to alleviate the financial stress and burden. If you would like to donate to help with accommodation, petrol groceries and rent for their home whilst in hospital every cent will help and then they can just concentrate on making sure baby Ellison is getting all the love and the best care possible. Thank you.
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