Hi, we are the Saxon family and we are fundraising for our son, Soren. Soren is our 5-year-old little boy who was diagnosed with Duchenne Muscular Dystrophy (DMD) on June 22nd, 2024. DMD is a rare genetic condition but is the most common form of muscular dystrophy in children. This terminal disease is caused by a mutation in the DNA that prevents the body from producing a protein called dystrophin. Without dystrophin, muscles become weak and damaged and unable to repair themselves. Over time, Soren will develop problems walking and breathing, eventually, the muscles that help Soren's heart pump will stop working. Soren's mutation is an out-of-frame deletion of exon 45-50. As you might expect, lots of treatments will be in Soren's future to help him with his quality of life. These are sometimes cutting-edge treatments and won't always be covered fully by insurance. There will also be travel costs to cities with specialized care, as well as home health care costs. It will be challenging for us to meet these costs. If you are able and would like to help us, the funds from this fundraiser will be used to meet medical and travel costs related to Soren's treatment.
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