Meet Kayla! After doing test after test 3 year old Kayla was clinically diagnosed with Leigh syndrome but not genetically. Leigh syndrome is a rare genetic neurometabolic disorder. It is characterized by the degeneration of the central nervous system (https://rarediseases.org/rare-diseases/leigh-syndrome/).Kayla has her good days and bad. Sometimes going a few days with very minor symptoms and others that she struggles with her balance and slowed speech. Kayla is on a vitamin cocktail called "mito cocktail" that is doing very well for her. It basically is just masking the symptoms of Leigh Syndrome. Right after she takes it she is full of energy and you wouldn't know she has any medical issues but the reality is that this is just a "masking" and we don't know how long it will mask them before the mutations take over.The last test that Kayla underwent tested all 20,000 genes. They will then compare each gene to each of Adam and Kim’s and find where the mutations are. The goal of this is to prove that it is genetic so that insurance will approve other treatments for Kayla. This test along with all of the other on going medical expenses are extremely expensive. This page has been set up to help the Wojdas in their family’s time of need.If you are not able to donate anything at this time, thoughts and prayers are very welcome!
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