My son Tyler 29, was diagnosed with Cerebellar Ataxia when he was 20. It is a rare degenerative disease that affects his balance, coordination etc. https://my.clevelandclinic.org/health/diseases/24077-spinocerebellar-ataxia There is not a cure at this time. His neurologist has emphasized the importance of finding his exact type for treatments that may be possible in the future. My insurance has turned me down 2x for needed test saying its "out of network". Of course my "in network" labs don't offer his specialized Ataxia Analysis with whole genome test. Which brings me to swallow my pride and ask for help. I of course support Tyler 100% and already "paycheck to paycheck " I need to get this ASAP without having to wait to save for it like I do with most everything we do. If you or anyone you know would like to help, please share. If we are fortunate to get anything more than the out of pocket cost of test, it will go to Tyler's savings. He is not allowed to drive, and with his diminishing fine motor skills cannot work either. Thanks so much if anyone is able to help me help him.
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