On July 17, 2012 , Sean & Jessica Cotman welcomed a beautiful baby girl they named Torey Lynn Cotman. What a wonderful day that was for them, as they had just started their family. Their story begins before this wonderful day....during Jessica's 8th month of pregnancy, at a normal routine Dr. Visit, her OB/GYN noticed that her amniotic fluid was low and requested her to see a specialist...Jesssica & Sean went to see the specialist and were then told that their unborn child had a heart defect, which after much testing was diagnosed as Left Heart Hypoplastic Syndrome... Which basically means she has half a heart and her left side doesn't exist...although it sounds extremely scary, after much research, it was found and confirmed by Dr.'s that she wouid have a series of 3 surgeries during her childhood that would correct the problem....and that many children with his syndrome thrive and live a long normal life. As you can imagine this news was extremely painful & heartbreaking for Sean & Jessica, but as brand new young parents to be, they took it head on and were ready to face the extremely difficult surgeries to come. Jessica was then told she would have to have a C- Section and would deliver at Texas Children's Hospital, as there would be a stand by surgical team to perform open heart surgery on Torey immediately to get the first surgery going and on their way to correcting Torey's severe heart defect.....back to July 17, 2012, as you can imagine this news brought the surrounding of their family & close friends to rally for support of this amazing couple...Jessica gave birth to Torey and she was immediately whisked away to the other tower for prep for her surgery....her daddy Sean never left her side as he went with Torey to the other tower....after bringing each family and friend over to introduce them to Torey one by one as she was in ICU, he was in there for one visit and a genetic specialist was in there with Torey....measuring her fingers, her head, her length of thumbs etc to which Sean asked what is going on, of course any new parent would be concerned for their newborn child...the Dr. then explained they suspected a genetic issue & were going to wait some time before performing the open heart surgery...devastating news, but again this couple handled it and fought for their lil girl. After much testing Torey was diagnosed with Kleefstra Syndrome a rare genetic disorder:.:so not only did Torey have half a heart (which is part of the Kleefstra Syndrome) but she now had been diagnosed with Kleefstra....Sean & Jessica made he decision to give Torey every chance at life, so they soon performed the first of 3 heart surgeries to correct Toreys heart...the first was open heart surgery, very big surgery at a very young age of one month old. Her story is long and detailed and although I could tell almost every single detail of her story, I simply want to show the fight these incredible parents have put up for their precious Torey....Torey was in Texas Children's Hopspital for her first 6 months of life....she was finally able to come home & see her nursery and Sean & Jessica were able to enjoy their many "firsts" as new parents....Torey was able to have 3 good years of life & along the way she has changed every single person who has met her, AMAZING the impact of one little girl. Torey has recently not been feeling well and as Sean & Jessica became concerned for her Jessica took her to Texas Children's this past Monday...on Wednseday, October 28, the Dr's delivered the devastating news that Torey's organs were beginning to fail, and that she was within days of passing, maybe hours. As you can imagine this family is devastated. This was extremely unexpected as Torey has been thriving & doing well, even had gotten off her vent machine....I ask of you to please help with any amount you can for this young couple to help with the expenses that are to come for this family in the immediate future...and to please keep them in your thoughts and prayers...thank you so much for taking the time to read their story.
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