Hi my name is Patricia, some of you know me, and some of you don't. I would like to share my story with you. Three and a half years ago my husband of 47 years was diagnosed with kidney cancer. They removed the affected kidney and we were told it was gone. For the last three and a half years he would go every 6 months to have CAT scans and every year to have an MRI well this past November when it was time to have his MRI we were told that they found a growth in his lower back muscle 8 cm. We were extremely shocked as his MRI in the previous year we were told that all was good no growth. Then we went back for his next MRI a year later we were told the 6 mm in his lower back muscle has grown to 8 cm. We were shocked we were like what are you talking about there was nothing there last year at least that's what you told us. So apparently whoever read his MRI that first year failed to report to the doctor that there was in fact a 6mm growth in his lower back muscle. That was beyond gross negligence on their part. So that entire year my husband's cancer metastasized to the eight cm apparently the radiologist made the notation but never put it in the doctor's report, so the doctor told us everything was good. Needless to say we were both devastated as kidney cancer is not curable. It was causing him a lot of lower back pain so they tried giving extreme high doses of radiation to try and help his pain, but it did not help anything. Next plan how to treat the cancer let's try immunotherapy, it's helped many people live longer and prevent the cancer from growing. So it was not like he had much of a choice so he had his first treatment of immunotherapy 4 days later he started to tell me he was not feeling well. He had a low-grade fever no appetite totally fatigue could not even sit up could not even stand to go to the bathroom. I called 911He was rushed to the hospital where he spent the last 6 weeks of his life. In those 6 weeks they did an enormous amount of tests on him everything they could think of but could not find out what was causing what he was feeling until the 5th week by then he could not even hold a spoon or swallow and he was totally delusional they told us he had an extremely rare side effect to the immunotherapy called hlh a life-threatening condition. It is usually seen in children, but the immunotherapy started the hlh in his colon which then spread through his entire blood system of his body. He then became septic, and developed pneumonia. My two sons and I literally watched him just waste away, mouth open eyes open, his whole body was swollen from edema. Basically he was dying a slow torturous death, we signed a DNR because he always told me if he was ever put on life support which he was that's not living so do not resuscitate him. So it came to that point where I ask them to please start giving him morphine for the pain, and please try lowering his oxygen to see if he can breathe on his own. This was something that they had tried without our consent and then turn the oxygen back up, that is not what he wanted.. both my sons and I demanded that they slowly turn down his oxygen and give him morphine at the same time so he can just peacefully go to sleep which was going to happen at some point anyway when they decided to do it but we were not going to let him suffer anymore. We stood with him held his hand and hugged him until he just went to sleep . I grabbed him in my arms and set him up in my arms I could not let him go I was hysterical I had just lost the love of my life not due to the cancer but do to a treatment that they don't know too much about at this point. And the negligence of whoever missed that 6mm growth . So that is the most important part of the story if you knew my husband you knew he also had hip issues needed two new replacements, but obviously that was now off the table. We were told he had a very rare side effect like 2% of people have ever gotten the side effect that he got to immunotherapy and that he was just unlucky. Can you imagine? He was just unlucky! So now I myself and disabled our medical bills are astronomical. Possibly in excess of the $75,000 that I put down for my LFEBridge account. All he had was Medicare and no secondary because we could not afford it so this is after Medicare had covered their part. My family and I have been through a lot of hard ships We have experienced an overwhelming amount of grief and loss over the last few years, and if you know us you know what they are. My husband and I have been on disability for many many years and we have struggled to keep afloat and pay our bills. I have struggled throughout my entire life with severe anxiety disorder , chemical imbalance and clinical depression , and now I am faced with these overwhelming hospital bills because even though he passed away I am still responsible for his hospital bills so that is my story our story. If anyone reading my story can find it in their heart to make a donation to my cause you can be changing a family's life, my family's life which has been through more than anyone can imagine. Any amount would help and be appreciated. Thank you all for reading my story, and as I posted please consider making a donation but more than that would you please share it with others. I need my story to be shared and shared and shared to get out to as many people possible. So if you are a Facebook friend of mine I know you would be willing to do this for me and I know you know my life story of grief and loss. Thank you all so much God bless you all. Love Patricia
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