"Though she be but little, she is fierce." -Shakespeare Hi, my name is Liz, and I'm fundraising for my daughter, Ophelia. Ophelia was born on Friday the 13th during a full moon in December of 2019 with all of the odds stacked against her. Due to a medical error, she suffered from a lack of oxygen for approximately 10-15 minutes during her delivery. This resulted in a diagnosis that I had never heard of before her birth, Severe Hypoxic-Ischemic Encephalothopy, or HIE for short. It's really just a fancy medical way of saying that her brain was deprived of oxygen. From that, Ophelia's MRI showed severe brain damage to the entirety of her brain also known as global brain damage, and the NICU neurologist didn't give much hope for her future. At one point my husband, Patrick & I were told that the possibility of her making it to her first year was near impossible. That we should take her home and love on her because she would most likely be in a vegetative state for the entirety of her life, whatever that may be. We went from a very normal "boring" pregnancy to being told our little girl (whom we still hadn't had the chance to hold for the last six days) may not make it. While "O" has a lot of scary diagnoses attached to her little body and name, they most definitely do not define her. She is a warrior and has fought every single day of her life to be here. We blame her fiery personality on her red hair. We were told that she had no suck/swallow reflex and before we left the NICU of her 34-day stay she was eating by the bottle and left without a gtube. She's since started eating pureed foods like a champ! She has had a ton of therapy since the start of her days, and we're beyond grateful for all of the therapists and doctors that have taken her this far. Recently, I had the opportunity to meet via Zoom with Dr. Robert Trujillo of NeuroCytonix in Monterrey Mexico. What he's doing there is truly groundbreaking for children like Ophelia. He's giving hope to people with Cerebral Palsy. Ophelia was diagnosed with Severe Quad Mixed CP, which means that all of her limbs are affected by cerebral palsy. She has high tone in her upper body and low tone in her lower extremities. She also suffers from cortical vision impairment or CVI. People that are verbal and have CVI have described it as though you're looking through Swiss cheese. O has also been diagnosed with Epilepsy and even had a bout of Infantile Spasms when she was around five months old. This treatment in Mexico is supposed to help with all of these diagnoses. It's a 28-day program where she will do an initial MRI to find the damaged areas of her brain and then the machine she'll be in for an hour a day for those 28 days will pinpoint the areas and help "regrow" the damaged cells. I've already had quite a few children in our brain-injured community go there and they are already seeing gains from this. I really believe that this may be the treatment to help her live her best life. The initial treatment costs $55,000 and I'm aware that Ophelia will most likely need a second treatment due to the extensive injury of her brain. NeuroCytonix offers a discount for the second treatment at $35,000. I know it's a lot of money, and I know it's an even bigger favor asking for your help, but I'm desperate to help my daughter. Up until last October, before we closed our business of 17 years, my husband & I have funded the majority of the non-traditional treatments that O has had. Since the closure of our company funds have become very tight and we don't have the liberty to take her to the therapies we'd like. The additional funds requested after the $90,000 is for travel and lodging in Mexico for both of the trips. I'm begging for any help you can give. If you cannot donate financially, would you consider sharing her LFEBridge link on your social media and with your friends? I appreciate you taking the time to read her story. Below are the links for the treatment at NeuroCytonix. https://www.neurocytonix.com/neurocytonix-mexico https://www.youtube.com/watch?v=2R-t9GP4-FQ https://www.youtube.com/watch?v=qm9j6JbKr9I https://www.youtube.com/watch?v=5gIzDWj150A https://www.youtube.com/watch?v=Svzxas26S4w
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