Greetings, we are raising money for our sweet Olivia, who is enduring a battle that no one should go through. Olivia was recently diagnosed with a rare disease called Median Arcuate Ligament Syndrome or MALS for short. MALS is something that you are born with, however only 1% of the population experiences symptoms. MALS is highly debilitating, and the pain is constant and excruciating. It causes her diaphragm to compress the celiac plexus nerve bundle which in return gives her symptoms of pain while eating or exercise, nausea, vomiting, constipation, shortness of breath, etc. It is hard to maintain a well-balanced diet to avoid becoming very malnourished. Olivia is set to have MALS surgery on August 14th in hopes the procedure will bring relief and a better quality of life. She is on a waitlist and hoping to hear a sooner date from the doctors. This is why our support is needed soonest. As a temporary relief, she has already undergone two temporary surgical procedures that wear off quickly and desperately needs the surgery to ensure she has a successful treatment/recovery. Olivia and her family will be traveling for this surgery all the way to St. Louis due to the limit surgeons who can perform this procedure. The St. Louis hospital was one of the closets out of the few facilities offered. Her and her Family recently returned after their first consultation with the doctors and their staff conquering the first of many road trips as she gets her care and follow up treatments. Despite their long journey ahead, several thousands of miles on the road, nights sleeping away from home, and a long recovery process, they had nothing but positive feedback to say about Olivia's medical care team and this news has helped to ease their worries. Here is where we can help to less the burden of upcoming expenses of hospital bills, travel expenses, and cost of living associated with being away from home while Olivia has her surgery and during her recovery. As they continue to work with their insurance company to find what exactly will be covered by, it is certain that out-of-pocket expenses will arise, and they need our help to minimize those expenses. The recovery period of MALS is measured in months, but for most patients, especially minors, it takes 1 full year. Please consider donating to help Olivia and her Family during this difficult time so they can focus on Olivia's surgery and healing post-op. Also, please take some time to research MALS and other vascular compressions. Olivia has many admirable qualities but one that stands out the most to us is her strength, pretty smile, witty sense of humor, and the ability to adapt and persevere. After being diagnosed, she has shown that no matter what life throws at her, she will come back even stronger and doesn't lose hope nor let it bring her down. Olivia is a warrior, she fights every day for herself, her health, and for others. Olivia's fight is our fight!! We appreciate any efforts that you can make, even if it is only to share this that would be very helpful too! Thank you for your support and please keep Olivia, her Family, and her medical care team in your prayers. We Love You Olivia and admire how brave you are and also your can-do attitude as you continue to battle. We stand with you every step of your recovery.
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