In 2012, I was diagnosed with ALS. By 2013, my condition required that I be wheelchair bound and that I need 24-hour care. I paid for it by raiding my retirement accounts, until the money ran out in September 2014.Then I was on Medicaid, but Medicaid covers only 15 hours per day. Three home care aides have loyally kept working for me, even though unpaid for 9 hours, and struggling financially themselves. Two of them are people I have known for many years, volunteering at the Ten Pound Fiddle, an all-volunteer nonprofit folk music organization.I expected that the sale of my house would provide funds to pay them after I die, forgetting that to receive Medicaid, I agreed to a "resource recovery plan", which means my only asset: my house. Over the last year, Medicaid has paid for home care as much as my house may be worth.Now I receive hospice services. ALS has progressed so that I will probably die soon. I am more needy than ever.I feel frustrated and guilty that I can't pay just compensation to these exceptionally compassionate professionals. I began to hope when two friends told me about LFEBridge.com.Whatever folks give will go to pay three aides taking care of me 'til death do us part. And I will die with a clearer conscience. Remember what I have learned: what goes around, comes around. I am grateful for the opportunity to volunteer, very grateful for the help from my three aides, and VERY VERY THANKFUL for everyone who can and does contribute.
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