The past few years for us have been a roller-coaster of ups and downs. A parent’s greatest pain and struggle is watching your children suffer. You would do anything in your power to make it go away. When it pertains to something you can't easily fix, it makes you feel powerless and tests your faith. Since 2018, after a syncopal episode (passing out) that caused a concussion; Delaney has been suffering with painful daily migraines (NDPH), dizziness, rapid heartbeat, low blood pressure and blurred vision. She has been through countless procedures, testing, doctor appointments and medications. She had two surgeries for Cerebral Spinal Fluid (CSF) leaks to repair holes in her spinal column. Both required strict bed rest laying completely flat for almost a full month. Her life has been anything but that of a “normal” teen. Her health dramatically interferes with the simplest tasks she needs for daily living. She’s missed weeks of school, has limited ability to work, is unable to drive some days and has had to give up sports. In addition to CSF, Cleveland Clinic further diagnosed Delaney with Postural Orthostatic Tachycardia Syndrome (a.k.a., POTS). The simplest way to explain the impact of POTS is to think of the times you stand up too fast and get dizzy or lightheaded then add the debilitating migraines from NDPH. The is no cure for either disorder. The medical team at Cleveland Clinic has worked tirelessly and diligently in treating Delaney. Within the past few days, we got amazing news that they will accept her into their Pediatric Pain Rehabilitation Program. It is a rigorous 3-week program that consists of physical therapy, counseling, nutritional analysis, and pain management. Basically, it is a program to help her have a sustainable and meaningful quality of life in how to manage life with the diagnoses? Starting next week, Delaney and I will be in Cleveland for the duration of the treatment. Our plea today is for financial assistance of the costs pertaining to procedures not covered by insurance. In addition, we are unable to utilize the Ronald McDonald housing because the team recommends that Delaney stay in housing that is most like her day-to-day environment. Unfortunately, that requires us to incur additional costs to rent a home for 3 weeks, supply it with groceries and pay for gas related to the 25 minute 2 to 4 times a day travel to and from the facility. They want her to be in a location that will allow her to eat, sleep and relax in conditions comparable to her everyday home life. Even a $10 donation will be impactful in Delaney’s journey to a better quality of life. Your generosity, thoughts and prayers continue to make a significant difference and we are beyond grateful for the blessings of your thoughtfulness.
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