Dear friends! My story is very difficult. I got sick in 2019. Then the first debilitating symptoms began: unbearable pain, nausea, vomiting, fainting. Doctors could not make a diagnosis for a long time. I had to travel all over the country in search of answers. My second husband left me and took my youngest son. My eldest son ended up in an orphanage. Today is 5 years since my hard struggle. I had three surgeries after being correctly diagnosed in Germany. I have a rare severe connective tissue dysplasia (Ehlers-Danlos Syndrome). I have multiple disorders of this syndrome. January 31, 2024 surgery for multiple compression syndromes. Dunbar's syndrome, which caused gastroparesis, Nutcracker Syndrome (compression of the left renal vein), due to which I could throw my left kidney in the trash. Willkie syndrome (compression of the duodenum by the superior mesenteric artery), which completely stopped the passage of food through the intestines. May-Turner syndrome (compression of the iliac vein), which made me unable to walk. I am now in 6 months of a very difficult postoperative recovery. I am wheelchair bound and need expensive supportive food. I am in great financial difficulty and in debt for my medical treatment. My circulation has improved a lot, but Ehlers-Danlos syndrome continues to destroy my body. I suffer from poor stomach and bowel motility. I have lost a lot weight. I continue to fight for the opportunity to see how my children grow. Due to a hopeless situation, I knock on all doors. Please help me. I experienced a lot of grief during the years of my struggle. My disease is rare and I constantly have to fight for the right to treatment and life .I really need your help! I thought that they would do the cherished operation and my problem would be solved. I spent 4 years studying vascular compression syndromes. I spent all my savings, I gave everything I had. I gave everything I could and could not. And now it turned out that I have another serious rare disease. It's called Mast Cell Activation Syndrome, my body is paralyzed! I can't eat! Please help me get out of this situation. I'm very tired. I'm tired of fighting, tired of trying. I really tried everything! With my health insurance, no one needs me. Right now I am in agony from pain all over my body Update: On January 10, 2024, I had surgery for Dunbar's compression syndrome. My health situation has become so bad that food passing through my stomach causes me severe pain to the point of fainting. Before this surgery, I visited Dr. Morata in Spain, who wanted to take me for surgery to correct vascular compression and perform a gastrojejunostomy (now I believe that it is very important to expand the passage of food). Unfortunately, after the operation on January 10, I feel so bad that I am really thinking about euthanasia. I decided for myself that the last thing I want is try this surgery with Dr. Morata.Lord,my biggest dream is to get rid of the pain.My gastroparesis has become so bad that there is almost no movement in my stomach.I am tired of suffering.I just want to get rid of the 24/7 pain.Please help me!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!I have more no strength. The situation is very bad
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