In the past year, this family has endured pain from one loss after another. A second trimester loss of their Daughter Hensley, and a loss of a parent in which resulted using 4 weeks of Maezie’s mothers maternity leave to be the primary caretaker of Maezie’s Grandma. During the pregnancy, she was followed as a high risk precaution due to the late loss of her sister which was determined after birth to be non-related to Maezie’s conditions. On June 15, 2024 Maezie was due to arrive however, before beginning the induction it was confirmed she had flipped into a position called “frank breeched.” A decision was quickly made when her heart beat started to dip. So, an emergency c-section was the only route to go. When Maezie made her appearance, it was discovered that she had issues with her airways. Her lungs were perfect, however she was diagnosed with TEF, (Tracheoesophageal Fistula) which is an abnormal connection between the upper part of the esophagus and the trachea as well as Choanal Atresia which is a rare congenital narrowing of the back of the nasal cavity that causes difficulty breathing. This called for procedures that needed to happen quickly. Maezie went down for her first surgery at only a day old to repair the TEF, which was a success. A week later she was taken down to try to repair the bilateral CA. During this time she was intubated and sedated from birth until roughly 3 weeks old. It was made clear that with the CA diagnosis, as her body grows.. the nasal way would try to grow shut again and future surgeries to dilate the area would be needed. Maezie rebounded back quickly after the extubation giving her the green light to bottle feed. This little trooper shocked everyone leaving the bottle feeding to be the last obstacle to conquer to be discharged. Maezie was to be intubated down in the OR to have a scope done on her CA, to reassure she was being sent home with a safe airway. It was discussed with the parents that If she needed another drilling, they’d be sent out to another hospital due to an international shortage on the instrument needed. Two hours before the procedure, the decision was made to intubate Maezie bed side before sending her down which resulted in ELEVEN attempts. By the 11th attempt, the team decided to use a special camera that could’ve been used down in the OR the first time. This resulted in additional damage to the airway causing extreme swelling, a diagnosis of pneumonia, and a longer intubation period. ( The American Society of Anesthesiologists has strict guidelines that state no more than 3 attempts are to be made after 3 failed attempts they are to use a laryngoscopy.)Maezie was then sedated for another week setting her back from going home. After another long week, Maezie was extubated and examined to return to bottle feeding where she was unable to due to safety concerns. Her cry was inaudible. Within a few days it was becoming concerning that Maezie was really struggling to breathe. A big decision was made to transfer her out to another hospital, four hours from their home town. Maezie is now in the NICU at Cincinnati Children’s Hospital. With that being said, this push outs scheduled upcoming procedures to accommodate for getting multiple teams involved to avoid putting Maezie through more than she needs to be. This family is quickly coming to a road block where two of Maezie’s siblings will be returning to school, Dad is recovering from a shoulder surgery, with the weeks counting down to return to a work/school schedule himself and Maezie’s mom is being left with no choice but to leave her position of employment to care for the older two children as well as be available for any decision making for Maezie which involves a lot of traveling. Any help received will go strictly towards medical bills, gas to travel back and forth, lodging, and any additional obstacles that may arise. https://youtube.com/watch?v=OdqXr5YKrTM?feature=share
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