On April 11th, 2024 our daughter Amber Mullin was admitted to the hospital for a rare auto-immune disease, anti-NMDA receptor encephalitis. She spent months in the Neuro-ICU and is still in the hospital to this day. We can hardly put into words the fear and uncertainty that engulfed us as we watched her fight for her life. This is a disease in which the immune system attacks the brain. It is only found in 1 in every 1.5 million people. Anti-NMDA receptor encephalitis was first identified in 2007, and due to its rarity and brief history there is very little research to guide treatment. Amber has suffered from autonomic instability (very rapid or slow breathing, fevers, extremely high heart rate, and heart pauses) mania, speech problems, depression, delusions, hallucinations, agitation, catatonia, seizures, and memory loss. Every day has been a battle, but we see glimpses of hope as Amber starts recognizing us again and relearns the simplest of tasks. This horrific disease has left Amber unable to do the things that many of us take for granted. For those who are lucky enough to recover, it can take up to 2 years. Amber is a bright, kind, selfless, and gracious young woman who has a long, hard, and uncertain road ahead of her. We ask that you please donate so that she does not have to walk this road alone. Any contribution you can make, no matter how small, will go directly towards Amber's medical bills, student loans, and the continuous support she needs. If you are also experiencing financial hardship we ask that you please help her by spreading the word and sharing this page to your social media so that Amber can receive the help and care needs. Your generosity will make a world of difference in her recovery and provide us with the peace of mind to focus on her healing.
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