Hello. I’m raising funds for my friend Fernando, his wife and their newborn baby Stefan Alexandru. Fernando’s son was born with very rare condition called Myotubular Myopathy. It’s a genetic neuromuscular disorder that is characterized by muscle weakness that is most typically severe. This disease is caused by defects or deficiencies of myotubularin, a protein thought to promote normal muscle development. It is inherited in an X-linked recessive pattern, meaning it primarily affects boys. Fernando and his wife spent all their free time in hospital. Fernando is the only person who is providing for his family, hence he needs to spent more time at work to earn extra money to support his wife and son. That results with less time to be there for his newborn baby. Please help to provide a support for Fernando and his family. This will help him to spent a quality time with his son. No donations are to small or to big. All the money goes straight to Fernando’s account. Please help him to concentrate on what is really important at this time in his life.
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