My name is Gwen Kinghorn. My dad, Scott Kinghorn, is living with Friedrich’s Ataxia. FA is a rare, genetic disease that has no cure. He was diagnosed with late onset FA (even more rare) when my mom was pregnant with me, 14 years ago, at the age of 34. Just recently, the FIRST medication to treat FA (slows the progression) was released. Unfortunately, this new drug is going to cost him $36,000 a year because it is not covered by insurance and he doesn’t qualify for the pharmaceutical company’s financial assistance program. My dad is not one to give up, he worked at PepsiCo for 26 years. By the time he went on permanent disability (which was just last month) he had lost most of his vision and and was in a motorized wheelchair. He spent as long as he could trying to make our life better. And, we are so glad that he worked for PepsiCo because their disability plan will take care of him for the most part. However, the costs of this new medication we’ve all been hoping and waiting for is just so disappointing and discouraging. That’s why we, Scott’s kids, are hoping with your help, to be able to support him getting on the new medication. https://www.curefa.orghttps://www.curefa.org/
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