Desmond is my 4 year old son. Early Christmas Morning of 2024 I found him cold, blue, and unresponsive. He was life flighted to the nearest Childrens hospital 4.5 hours away from home due to being in organ failure from his body being filled with about 75oz of septic fluid compressing his heart and filling his lungs. He spent 3 weeks in the CICU on a ventilator and sedated as his body fought off infection. After 13 days and several procedures we were able to finally get a diagnosis for the constant rebuild of fluid in his heart space as we were hospitalized in July of 23 as well for similar issues Desmond was Diagnosed with something called Paricardial Lymphangioma. A condition classified as a cancer so rare there are only 35 other known cases only 2 of them being In pediatric patients. The simple explanation: His lymphatic system is malformed and instead of draining fat and mucous out of his body. His drain into his heart. He has spent the last 109 days in hospital learning to walk, sit up, eat and just be a normal kid again. while getting poked and prodded several times a day, on a feeding tube and with a chest drain. He still has quite a ways to go in all areas. Treatments thus far have proven to be minimally successful so we may begin targeted radiation soon or look at surgical procedure options to help get the fluid to stop so we can remove his chest drain. I am a newly single mom of 4 beautiful children. All very young. 7,4,2 years and 9 months old. I can no longer work due to being in the hospital with my son and have used all of my savings to cover the cost of childcare for my girls back home and to just eat while being here with him. Even his diapers are costing me out of pocket because he’s allergic to the hospitals brand. Every little bit helps us be able to afford more visits with my daughters, help cover their essential needs costs and make it easier for me to pour goodness into them with less worry. He is looking at being here until his 5th birthday in the end of May if not longer. Even still. This will be a lifelong condition we will have to manage. So we need all the support we can get. We truly appreciated every single person who has held us this far and helped ease these burdens. We ask that if you can’t donate that you at least share and spread the word to help. Thank You
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