Abbie is a 4 year old swan (syndrome without a name), When she was 6 months old she started having seizures and ended up spending 2 months in hospital, she was sent home with medication but she kept ending up in hospital with chest infections, it soon became clear that there was more wrong than just epilepsy because she was unable to feed so needed to be tube fed and her development was very delayed. When she was 1 year old she had an operation on her stomache to tie her tubes because she had severe reflux and to also have a gastrostomy tube for her feeding, the geneticist is involved and trying to find us answers but as of yet nothing has been found.Abbie uses a childrens hospice which she gets a lot of enjoyment from, she uses an omivista interactive projector when she is there and this is what i am trying to raise funds for because it will really help with her development and she gets so much enjoyment from it. Thankyou to anyone who is able to help
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