Sinds 2017 is mijn zoon(Richard) chronisch ziek hij heeft syndroom van raynaud en ziekte van buerger wat beide een vaataandoening zijn, en zorgt voor slechte bloedcirculatie in zijn benen.
Door deze ziekte heeft mijn zoon meerdere amputaties gehad aan zijn benen, zo werd er eerst 1 teen geamputeerd en over de jaren heen nog een teen, en uit eindelijk zijn beide onderbenen.
Na het revalideren en het opnieuw leren lopen kreeg mijn zoon in het begin 2023 zijn beide protheses en dat ging voor een half jaar redelijk goed, Totdat hij in de zomer van 2023 een wondje kreeg aan zijn linker stomp.
Doordat wondje heeft hij zijn linker prothese niet meer kunnen gebruiken, en door zijn aandoening helen zijn wondjes slecht of helemaal niet, hiervoor gaat hij al jarenlang naar het umcg voor controle en hulp.
In 2024 heeft mijn zoon ook wondjes gekregen aan zijn rechter stomp, dit is gekomen door dat hij zijn hele gewicht moest zetten op zijn goeie stomp met het overstappen naar het toilet of zijn bed.
Hierdoor kan hij nu beide protheses niet gebruiken, en zit hij de hele dag in een rolstoel waar hij rug / heup en arm klachten van krijgt.
In november 2024 is Richard voor een controle afspraak geweest in het ziekenhuis, omdat zijn wondjes aan beide stompen met de dag groter worden en er steeds meer wondjes bijkomen.
Door zijn aandoening helen de wonden niet en worden zwart en uiteindelijk worden de wondjes necrotisch dat betekend dat zijn wondjes eigelijk beginnen te rotten.
Dit doet enorm veel pijn en gebruikt mijn zoon hevige en zware pijnstillers waar je overdag suf en slaperig van word, hierdoor zit hij de afgelopen maanden niet lekker in zijn vel.
In januarie 2025 heeft hij daarom besloten voor nog een keer voor amputatie te gaan, dit keer door de knie, zodat hij van de pijn en ellende af is, het is nooit zeker of het hier mee verholpen is.
Maar omdat hij hier nu al vanaf 2024 mee rond loopt en er vanuit het ziekenhuis niks meer gedaan kan worden, is amputatie de enige optie.
Na deze operatie en het revalideren moet mijn zoon een aangepaste rolstoel krijgen omdat de kans van lopen klein is, omdat hij hier de heledag in zit, moet het een aangepaste rolstoel zijn zodat hij er makkelijk in en uit kan komen.
Omdat dit niet vergoed word is hij bang dat hij straks thuis komt vast te zitten met geen zicht op de toekomst, ook verliest hij hierdoor zijn vrijheid om zelfstandig binnen en buitenshuis zijn eigen gang te gaan.
Omdat een aangepaste opmaat gemaakte rolstoel niet vergoed word en hij zonder een goeie rolstoel niets veel tot niets kan doen zelfstandig hoop ik via deze weg te kunnen helpen en ondersteunen.
Zodat Richard zelfstandig zich kan redden in het dagelijks leven, en hij weer een beetje plezier terug krijgt in zijn leven.
English:
My son (Richard) has been chronically ill since 2017. He has Raynaud's syndrome and Buerger's disease, both of which are vascular disorders and cause poor blood circulation in his legs.
Due to this disease, my son has had several amputations of his legs, first one toe was amputated and over the years another toe, and finally both his lower legs.
After rehabilitation and learning to walk again, my son received both prostheses in early 2023 and that went reasonably well for six months, until he got a wound on his left stump in the summer of 2023.
Because of this wound he can no longer use his left prosthesis, and due to his condition his wounds heal poorly or not at all, for which he has been going to the UMCG for years for check-ups and help.
In 2024 my son also got wounds on his right stump, this was due to the fact that he had to put all his weight on his good stump when transferring to the toilet or his bed.
As a result, he is now unable to use both prostheses and spends all day in a wheelchair, which causes back, hip and arm problems.
In November 2024, Richard went to the hospital for a check-up appointment, because his wounds on both stumps are getting bigger every day and more and more wounds are appearing.
Due to his condition, the wounds do not heal and turn black and eventually the wounds become necrotic, which means that his wounds actually start to rot.
This hurts a lot and my son uses heavy painkillers that make him drowsy and sleepy during the day, which is why he has not been feeling well in recent months.
In January 2025, he therefore decided to have another amputation, this time through the knee, so that he could get rid of the pain and misery, but it is never certain whether this will solve the problem.
But because he has been living with this since 2024 and nothing can be done from the hospital, amputation is the only option.
After this operation and rehabilitation, my son must get an adapted wheelchair because the chance of walking is small. Because he sits in this all day, it must be an adapted wheelchair so that he can easily get in and out.
Because this is not reimbursed, he is afraid that he will soon be stuck at home with no view of the future, and he will also lose his freedom to go his own way independently inside and outside the home.
Because an adapted, custom-made wheelchair is not reimbursed and he cannot do much or anything independently without a good wheelchair, I hope to be able to help and support in this way.
So that Richard can manage independently in everyday life, and he can get a little fun back in his life.
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